School and Mothers Day

As most of you would know my school attendance has been very hit and miss. I haven’t for a long time had 5 consecutive days of early mornings and full days. I am over the moon that I did that for the first time in ages. The mindset that I have at the moment is to congratulate myself on all the little things even if it is waking up on time, finishing my day without falling asleep, falling asleep quicker and even pushing myself with further walks. I know for almost all of you that these are simple easy things to do but for me I do struggle and I have accepted that.

I know lots of my friends say that I am so strong and that I never stop fighting. Truthfully, when I am with anybody I always never show that I am in pain. I always have a smile on my face and its only when I am home with just the immediate family I feel as if I can talk to them openly about it. If something goes wrong or if I need a hug to keep me going they are there for me. For me I don’t like to burden anybody with my worries, I have had many people telling me that it isn’t a burden but for me I feel as if it is. If you ever catch me at home you would see me in my knee high compression socks, pyjamas, fluffy socks as well as a blanket. Even if I do look like a fool I am as comfortable as possible and am ready to continue fighting.

As you all know Mothers Day was just on Sunday. For me Mum is the person who I lean on the most, she has been there since day one - fighting alongside me for an answer as well as some management. She has dedicated so much of her time to helping me; she stays back late in the morning to take me to school, taking me to appointments and hospitals as well as on the odd nights where it is all becomes too much and she comes and lies with me while I am trying to fall asleep helping to try keep my mind of the pain. For me Mum is the strength that keeps me continuing. Happy Mothers Day Mum! x